Congenital and Rare Diseases and Social Security Disability
Congenital and rare disorders, including conditions that may be evaluated under several body systems or Compassionate Allowances.
Adult Listing 10.00 addresses certain congenital disorders that affect multiple body systems. Many rare diseases have no dedicated listing. Social Security may still find disability if the medically determinable impairments — alone or combined — meet or equal a listing, or if residual functional capacity rules out substantial work.
Some rare conditions appear on the Compassionate Allowances list; others do not. We verify CAL status against the current SSA list and do not assume a rare diagnosis is a CAL condition.
POTS is included here as a high-interest condition without a dedicated listing. Huntington’s disease and muscular dystrophy also appear when those guides are published, because SSA may evaluate them across neurologic and rare-disease pathways. More rare-disease guides will follow.
Return to the Disability Conditions Center to browse all published resources.
Official SSA resource: Listing 10.00 — Congenital Disorders That Affect Multiple Body Systems
Congenital and Rare Diseases condition guides
- Postural Orthostatic Tachycardia Syndrome
POTS is an orthostatic-intolerance syndrome without a dedicated SSA listing. Evaluation centers on objective diagnosis and supported limits from tachycardia, dizziness, syncope, fatigue, and cognitive symptoms.
- Huntington’s Disease
SSA evaluates Huntington’s disease under Listing 11.17. Adult-onset and juvenile-onset Huntington disease appear on the current CAL list. A positive gene test is not by itself an approval.
- Muscular Dystrophy
SSA evaluates muscular dystrophy under Listing 11.13 using extreme motor limits in two extremities or marked physical plus marked mental limitation. Some named dystrophies appear on the current CAL list; not every MD diagnosis does.
- Amyotrophic Lateral Sclerosis
A progressive motor neuron disease evaluated under Listing 11.10. Adult ALS is also on SSA’s Compassionate Allowances list for expedited case processing when the documented diagnosis meets applicable rules.
- Intellectual Disorder
Adult Listing 12.05 requires significantly subaverage intellectual functioning, current adaptive deficits, and onset before age 22. An IQ score alone is not an approval.
Speak with a Social Security Disability attorney
Brock & Stout can review a Social Security Disability claim, look for missing medical evidence, and discuss next steps. We do not charge a fee for SSD representation unless we win.
This page is general educational information about Social Security Disability as of the date of this publication. It is not legal or medical advice, does not create an attorney-client relationship, and does not guarantee results. Eligibility depends on individual facts and current Social Security rules.
